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Rett UK

Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning

MISSION AND VALUES

  • A cure for Rett syndrome is found.
  • That everyone with Rett syndrome is diagnosed, their symptoms effectively treated and their families, carers and friends inclusively and appropriately supported
  • Deliver excellent support services to meet the short and long term needs of the Rett community
  • Promote, support and encourage research to enable improvements in identifying new therapies and treatments for Rett people and ultimately a cure
  • Raise awareness of Rett syndrome and its effect on individuals and their families

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