Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning
Our purpose...
Rett UK is a national charity dedicated to supporting and empowering people with Rett syndrome and their families.
Our strategic aims are to ...
· provide professional family-support services, activities and events at a local, regional and national level
· educate health, social care and education professionals about Rett syndrome to enable quicker diagnosis and improved standards of care throughout the UK
· advocate for people with Rett syndrome to be given the support and resources needed to be active communicators
· promote, support and encourage research into new therapies and treatments for Rett syndrome
Our vision...
That everyone with Rett syndrome is given every possible opportunity to achieve their individual potential so that they may live their life to the full.
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