Nerve Tumours UK

Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have NF.

NF is the medical group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN), a set of neuro-genetic conditions that cause tumours to grow on nerve endings, and which also have many associated medical conditions and complications. Half of all cases are passed down from a parent (there is a 50% chance of passing down the defective gene), the other half of all cases are de novo, the first time a family member has been born with the defective gene. Therefore anyone of us could have a family member affected by the condition, in the future.

Nerve Tumours UK funds a unique Specialist Support Network, comprising regional nurses, a national helpline, clinical guidelines, information days, an interactive website, and online communities to help those diagnosed with NF, including their carers, families, and any associated medical professionals involved in their care.

Our fundraisers have been out in force, challenging themselves to go the extra mile, cycle the extra kilometre, or hike another peak to support people living with NF. Join their ranks, pick an event from any of the listed challenges here, or find an event that suits your ability and fitness - register, create your fundraising page and get training!