Little Hearts Matter is the only charity in the UK dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition – or half a working heart. We support families along every step of their journey, from initial diagnosis, through treatments and into life at home.

Our core focus is to offer support and information to our members. However, we’re equally committed to raising awareness of our children’s conditions and the challenges these bring to their families. In doing so, we actively seek ways in which we can take our members’ voices into arenas for change.

Our Mission

To provide a support and information service that reduces the isolation, fear and lack of understanding experienced by families when a child is diagnosed with having half a working heart.