CSF Leak Association

CSF leaks are painful and incapacitating caused by a hole in a membrane containing fluid protecting the brain and spine crucially they're treatable but often misdiagnosed. We work to get patients treated promptly for the best chance of full recovery

CSF Leaks can happen to anyone. People affected need specific support, to make sense of what is happening. CSF leaks are treatable if the symptoms are recognised and appropriate action taken, with early intervention having the best outcomes. Our aim is for everyone with a CSF Leak to get appropriate treatment to to reduce suffering, prevent harm and enable a return to a normal active life again.