Action Duchenne

Duchenne muscular dystrophy (DMD) is a rare genetic muscle wasting condition affecting around 2,500 people in the UK – the vast majority being male. The body does not produce a protein called dystrophin which is needed for muscle function.

Usually diagnosed around the age of 4 years, parents are told the devastating news that the life expectancy of their child is around 30 years – the worst news you could ever expect to hear. DMD severely affects qualit...