Rare Diseases

Dravet Syndrome UK

Huntington's Disease Association

Supporting people affected by Huntington's disease in England and Wales.


Support Education Research

Gene People

CdLS Foundation UK & Ireland

CdLS Foundation UK & Ireland supporting families affected by Cornelia de Lange Syndrome.

Tuberous Sclerosis Association

Niemann-Pick UK (NPUK)

Making a positive difference to those affected by Niemann-Pick diseases