Making a positive difference to those affected by Niemann-Pick diseases
Supporting people affected by Huntington's disease in England and Wales.
Empowering everyone in the pituitary community, every step of the way.
CdLS Foundation UK & Ireland supporting families affected by Cornelia de Lange Syndrome.
"For the 1 in 17 people with a genetic, rare or undiagnosed conditions in the UK "
We are here to support UK patients and families affected by SDS. There are approximately 100 known patients in the UK and we estimate there are 1,500-2,000 patients in US and Europe
Our purpose is to improve the lives of those affected by PTEN genetic alterations.
