Tuberous Sclerosis Association

The Tuberous Sclerosis Association (TSA) is the only charity in the UK focused on improving the lives of people affected by TSC: 
•    Advocacy and awareness. We’ll push for TSC to be recognised as a priority among decision-makers and the wider public. This means influencing policy, advocating for improved access to treatments, and raising awareness of TSC as a serious and complex condition.
•    Research. We’ll drive world-class research that leads to better diagnosis, new treatments, and innovative therapies. We’ll also work to ensure people affected by TSC play a central role in shaping research efforts, making sure studies reflect real needs.
•    Support and information. We’ll continue to provide high-quality, person-centred support and information, making it easier for people with TSC and their families to navigate daily life. We want everyone affected by TSC to feel informed, empowered, and connected to a supportive community.
•    Sustainability. We’ll build on our strong foundations to ensure the TSA continues to thrive. By strengthening our governance, improving the way we work, and adapting to emerging challenges, we’ll remain a stable and effective charity for years to come.
Our mission is to provide help for today and a cure for tomorrow.