The Tuberous Sclerosis Association (TSA) is the only UK charity focused on improving the lives of people affected by the rare genetic disorder Tuberous Sclerosis Complex (TSC). Founded in 1977, the TSA’s mission is ‘To provide help for today and a cure for tomorrow’. We do this by:
Providing support and information to the TSC community, including the UK-wide TSA Support Line
Organising events and opportunities for the TSC community, allowing people affected by TSC to come together, learn and feel less alone
Funding internationally-significant research into all aspects of TSC, with research focused on what will have the greatest impact on life with TSC
Working closely with clinicians and other professionals focused on improving the lives of people affected by TSC
Campaigning on behalf of the TSC community to ensure consistent and meaningful access to health and social care provision
Thanks to the TSA, no-one affected by TSC should ever feel alone.