Rett Syndrome is a post-natal neurological disorder, which most often affects little girls, around the age of 12-18 months.

Estimated to affect 1:10,000 people, Rett Syndrome is most often seen in girls and women because the gene which causes Rett Syndrome is on the X chromosome. Girls and women have two X chromosomes whereas boys have one. The consequence of not having that ‘back up’ copy of the gene is devastating.