We are a registered national charitable trust set up in 2008 by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Our organisation was set up:
- To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
- To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
- To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
- To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e.g., in the treatment of cancers in general.
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