CdLS Foundation UK & Ireland

Weston Super Half

Date: 24th Mar 2024

Deadline: 14th Mar 2024

Cheltenham

The Weston Super Half will set off from Marine Parade at the entrance to The Grand Pier. It will take in the glorious sites of Weston-super-Mare and the surrounding picturesque Somerset villages and countryside in this single lap, closed road, fast half marathon event. And the pièce de résistance, a totally unique opportunity to finish quarter of a mile out to sea on Weston's Grand Pier.

Weston Super Half

The CdLS Foundation UK & Ireland is a family support organisation which exists to ensure early and accurate diagnosis of CdLS throughout the world, promoting research, and enabling individuals, families, friends and professionals make informed decisions and plan for the affected person’s present and future.
The Foundation provides support through holding conferences twice a year where families get to meet each other, get the chance to talk informally about the condition and learn from the experiences of others. There are presentations that focus on specific elements of the condition. It is also a chance for families to meet with professionals that know CdLS.
The Foundation has a helpline which is manned the Office Administrator. They produce booklets and other information packs about the condition which are sent to carers and professionals to spread awareness and provide basic information about CdLS. This information comes from the Foundations own Scientific Clinical Advisory Team (SCAT). This team is comprised of top professionals from the UK with an extensive knowledge of CdLS.
Families receive “Reaching Out” magazine, which is published twice a year and covers news stories about research developments, news from our families and articles on issues affecting people with CdLS.

Register for Weston Super Half

You will be charged £46.80 (£45.00 + Booking Fee) for your place.

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You will be charged £46.80 (£45.00 + Booking Fee) for your place
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