Mitochondrial disease, or mito, is a rare, complex and incurable genetic disorder that affects people in very different ways, often affecting babies and young children. We’re the UK’s leading mitochondrial disease charity, and the largest charitable funder of mitochondrial research in Europe.
Our charity was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mito at 8 months old. Finding little in the way of specialist knowledge or support to help her through her ordeal, Liz set out to provide answers for herself and others in her situation.
What began as an informal network of family and friends has grown into a national charity run by a small team of dedicated staff. Today we support over 1200 families, work tirelessly to raise awareness of this rare disease, fund research into treatments and a cure, and form a vital link between patients, doctors and medical science bodies.
08th Jun 2024
Aintree Racecourse, Ormskirk Rd, Aintree, Liverpool L9 5AS
Register22nd Jun 2024
Wolverhampton Racecourse, Gorsebrook Road Dunstall Park, Wolverhampton WV6 0PE
Register03rd Aug 2024
Clay House Farm, Flittogate Lane, Tabley, Knutsford, Cheshire, WA16 0HJ
Register07th Sep 2024
Carlisle Airport, Aviation Way, Carlisle CA6 4NZ
Register