This October, Rett UK is inviting you to part in our key number challenge and help raise awareness about the devastating impact that the syndrome has on those directly affected and their families. Rett UK has been supporting the Rett syndrome community for 36 years and we believe that only by people really understanding the true nature of the disorder will we be able to win over new hearts and minds who will join us in searching for better solutions to a host of difficulties encountered on a daily basis.
This challenge comprises of three key numbers that are important to the Rett community:
1,500 – The number of people with Rett syndrome we estimate there would be in the UK if they were all diagnosed.
10,000 – The prevalence of Rett syndrome in females is around 1;10,000.
40,000 – The prevalence of Rett syndrome in males is around 1:40,000.
The idea You pick one of the key numbers and take part in your own custom challenge based round this number. That could be anything from losing 1500 grams of weight, running for 10,000 seconds or cycling 40,000m over the course of October. No idea or goal is too crazy and you are welcome to do it on your own, or involve friends, family or work colleagues – the choice is yours! So Run, Walk, Push, Cycle – miles, kilometres, steps, it all counts!
Register yourself or your team Get people to sponsor your efforts & keep a log of your challenge (e.g. Strava, Nike Run, Fit Bit, etc.) submitting your evidence at the end of the month and we will send you a unique Rett UK medal.