PTEN UK and Ireland Patient Group

Our purpose is to improve the lives of those affected by PTEN genetic alterations.


The patient group’s purpose is to improve the lives of patients, parents and carers of all ages, in the United Kingdom and Ireland, who are affected by PTEN genetic alterations, PTEN Hamartoma Tumour Syndrome (PHTS), Cowden Syndrome (CS), or Bannayan-Riley-Ruvalcaba Syndrome (BRRS) through better patient support, increased awareness, more accurate and accessible information, earlier diagnosis and intervention, greater research into treatment and prevention, and improved coordination of ...


Featured Events

Check out these featured events from this charity

MacTuff New Year 21k - The Full MacTuff

Jan 11, 2026 - Jan 11, 2026

Knockhill Racing Circuit, Nr Dunfermline Scotland. KY12 9TF

Registration Price:
Fundraising Amount:Raise as much as you can.

Edinburgh Marathon - Edinburgh Running Festival

May 24, 2026 - May 24, 2026

Edinburgh EH8 9BL

Registration Price:£255
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Glasgow - 5K

Aug 29, 2026 - Aug 29, 2026

Strathclyde Country Park, Hamilton Rd, Motherwell, Glasgow, Lanarkshire. ML1 3ED

Registration Price:£37
Fundraising Amount:Raise as much as you can.

All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

Edinburgh 5K - Edinburgh Running Festival

May 23, 2026 - May 23, 2026

Potterrow, Edinburgh EH8 9BL, UK

Registration Price:£42
Fundraising Amount:Raise as much as you can.

Edinburgh Half Marathon - Edinburgh Running Festival

May 24, 2026 - May 24, 2026

Edinburgh EH8 9BL

Registration Price:£125
Fundraising Amount:Raise as much as you can.

Edinburgh Marathon - Edinburgh Running Festival

May 24, 2026 - May 24, 2026

Edinburgh EH8 9BL

Registration Price:£255
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Glasgow - 10K

Aug 29, 2026 - Aug 29, 2026

Strathclyde Country Park, Hamilton Rd, Motherwell, Glasgow, Lanarkshire. ML1 3ED

Registration Price:£47
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Glasgow - 15K

Aug 29, 2026 - Aug 29, 2026

366 Hamilton Rd, Motherwell ML1 3ED, UK

Registration Price:£57
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Glasgow - 2.5K

Aug 29, 2026 - Aug 29, 2026

366 Hamilton Rd, Motherwell ML1 3ED, UK

Registration Price:£31
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Glasgow - 5K

Aug 29, 2026 - Aug 29, 2026

Strathclyde Country Park, Hamilton Rd, Motherwell, Glasgow, Lanarkshire. ML1 3ED

Registration Price:£37
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Edinburgh - 10K

Sep 5, 2026 - Sep 5, 2026

Edinburgh, UK

Registration Price:£47
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Edinburgh - 15K

Sep 5, 2026 - Sep 5, 2026

Edinburgh, UK

Registration Price:£57
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Edinburgh - 2.5K

Sep 5, 2026 - Sep 5, 2026

Edinburgh, UK

Registration Price:£31
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Edinburgh - 5K

Sep 5, 2026 - Sep 5, 2026

Edinburgh, UK

Registration Price:£37
Fundraising Amount:Raise as much as you can.