Genetic Alliance UK

Leeds Marathon

Date: 12th May 2024

Deadline: 25th Mar 2024

Leeds LS1 2QS

Former Leeds Rhinos player Rob Burrow was diagnosed with motor neurone disease in December 2019. Since then, Rob and his family have campaigned tirelessly to raise awareness and funds to support other families living with MND.

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Leeds Marathon

Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our members and the people they support are at the heart of everything we do.
We advocate for fast and accurate diagnosis, good quality care and access to the best treatments. We actively support progress in research and engage with decision makers and the public about the challenges faced by our community.
We run two long standing projects:
– Rare Disease UK, a campaign focused on making sure the new UK Rare Diseases Framework is as successful as possible, and to ensure that people and families living with rare conditions have access to a final diagnosis, coordinated care and specialist care and treatment.
– SWAN UK supports families affected by a syndrome without a name - a genetic condition so rare it often remains undiagnosed. We are the only dedicated support network for these families in the UK.

Register Your Interest

Registrations for this event are not currently open, but we would love for you to run for us when they reopen. Please register and we will inform you about next year's event details as soon as they are released.

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