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MPS Society

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by Mucopolysaccharide (MPS) and related diseases throughout the UK.

 

Every eight days, a baby born in the UK is diagnosed with an MPS or related disease. Affected families report feeling isolated and helpless as they struggle to come to terms with a devastating diagnosis whilst local health, social care and education professionals are not familiar with the complex, continually changing needs of children with this type of degenerative condition and struggle to meet the needs of the individuals and their families. The MPS Society reaches over 1,500 people annually through our support, information, advocacy and advice.


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