We are a registered national charitable trust set up in 2008 by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Our organisation was set up:
To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
Are you a UK FA Adult age 18 or over? See the invitation to attend our joint UK - Netherlands FA Adults Weekend in… https://t.co/qTtoDLP9hG
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