We are a registered national charitable trust set up in 2008 by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA.
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.
Our organisation was set up:
To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
Please read about Lindy Groom's “pop up” silent auction this weekend in aid of Fanconi Hope. https://t.co/4zAsI3x91T
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