Tourettes Action

Our vision is to empower people with Tourettes to live full lives and strive for social acceptance


Tourettes Action is the only UK‑wide charity dedicated to supporting people with Tourette Syndrome (TS) and their families.

We work to ensure that everyone with TS receives the practical support, understanding, and social acceptance they need to live life to the fullest.

Tourette Syndrome is an inherited neurological condition that affects around one school‑aged child in every hundred. More than 300,000 children and adults in the UK live with TS. Its key features are tics — involuntary, repeated movements and sounds. Many people with TS also experience co‑occurring conditions such as Obsessive Compulsive Disorder (OCD), Attention Deficit Hyperactivity Disorder (ADHD), and anxiety.

Our vision is a world where everyone with TS has access to comprehensive support at every stage of life, alongside continued research that leads to improved treatments. As we receive no government funding, Tourettes Action relies entirely on the generosity of supporters. Your fundraising makes a direct and meaningful difference to people with TS and their families throughout their journey.

Upcoming Events

What's coming up in the run for charity events calendar? It's never too late to join one of these great events.

Yorkshire Marathon 2026

Oct 18, 2026 - Oct 18, 2026

University of York, Heslington, York YO10 5DD

Birmingham Running Festival Half Marathon - November 2026

Nov 1, 2026 - Nov 1, 2026

Park Rd, The Royal Town of Sutton Coldfield, Birmingham, Sutton Coldfield B73 6BT, UK

Hertfordshire Half Marathon

Nov 1, 2026 - Nov 1, 2026

Old Knebworth Ln, Knebworth, UK

The Brighton Marathon

Apr 4, 2027 - Apr 4, 2027

Preston Rd, Brighton and Hove, Brighton BN1 6SD, UK

Manchester Marathon

Apr 18, 2027 - Apr 18, 2027

Talbot Rd, Old Trafford, Stretford, Manchester M16 0PX, UK

HOKA Hackney Half

May 16, 2027 - May 16, 2027

Homerton Rd, London E9 5PF, UK