Tourettes Action

Our vision is to empower people with Tourettes to live full lives and strive for social acceptance


Tourettes Action is the only UK‑wide charity dedicated to supporting people with Tourette Syndrome (TS) and their families.

We work to ensure that everyone with TS receives the practical support, understanding, and social acceptance they need to live life to the fullest.

Tourette Syndrome is an inherited neurological condition that affects around one school‑aged child in every hundred. More than 300,000 children and adults in the UK live with TS. Its key features are tics — involuntary, repeated movements and sounds. Many people with TS also experience co‑occurring conditions such as Obsessive Compulsive Disorder (OCD), Attention Deficit Hyperactivity Disorder (ADHD), and anxiety.

Our vision is a world where everyone with TS has access to comprehensive support at every stage of life, alongside continued research that leads to improved treatments. As we receive no government funding, Tourettes Action relies entirely on the generosity of supporters. Your fundraising makes a direct and meaningful difference to people with TS and their families throughout their journey.

Upcoming Events

What's coming up in the run for charity events calendar? It's never too late to join one of these great events.

Yr Wyddfa (Snowdon Sunrise) - August

Aug 23, 2026 - Aug 23, 2026

Snowdon, Caernarfon LL55 4UL, UK

Leeds Running Festival Half Marathon - August 2026

Aug 30, 2026 - Aug 30, 2026

Mansion Ln, Roundhay, Leeds LS8 2HH, UK

Snowdonia Sea2sky 25K - September

Sep 5, 2026 - Sep 5, 2026

Bath House Beach, Barmouth, LL42 1HB

Tough Mudder - London South 15K - Sunday

Sep 20, 2026 - Sep 20, 2026

Holmbush Estate, Crawley Rd, Faygate, Horsham RH12 4SE, UK

Tough Mudder - London South 5K - Sunday

Sep 20, 2026 - Sep 20, 2026

Holmbush Estate, Crawley Rd, Faygate, Horsham RH12 4SE, UK

Inflatable 5K - York - 5K

Sep 26, 2026 - Sep 26, 2026

Pocklington Industrial Estate, Halifax Way, York, Pocklington YO41 4AU, UK

Inflatable 5K - York - 2.5K

Sep 26, 2026 - Sep 26, 2026

Pocklington Industrial Estate, Halifax Way, York, Pocklington YO41 4AU, UK

Inflatable 5K - York - 15K

Sep 26, 2026 - Sep 26, 2026

Pocklington Industrial Estate, Halifax Way, York, Pocklington YO41 4AU, UK

Inflatable 5K - York - 10K

Sep 26, 2026 - Sep 26, 2026

Pocklington Industrial Estate, Halifax Way, York, Pocklington YO41 4AU, UK