Down Syndrome UK

Experts by experience


Down Syndrome UK is a parent-led organisation that provides families with genuine support and honest information from diagnosis onwards. What sets us apart is our comprehensive training and resources for both parents and professionals, expertly crafted by those with lived experience of Down syndrome. We work to ensure children with Down syndrome have the best developmental opportunities by equipping the people who support them—from families to educators and healthcare professionals—with evidence-based knowledge and practical strategies, enabling every child to flourish and reach their full potential.

Upcoming Events

What's coming up in the run for charity events calendar? It's never too late to join one of these great events.

Snowdonia Sea2sky 25K - September

Sep 5, 2026 - Sep 5, 2026

Bath House Beach, Barmouth, LL42 1HB

Altrincham 10k

Sep 6, 2026 - Sep 6, 2026

14 Greenwood St, Altrincham WA14 1RZ, UK

The Peak District Challenge - Copper Challenge - 25K

Sep 19, 2026 - Sep 19, 2026

Memorial Hall Road, Hathersage S32 1DU, UK

Inflatable 5K - York - 5K

Sep 26, 2026 - Sep 26, 2026

The Estate Office, Escrick, York YO19 6EA, UK

Inflatable 5K - York - 2.5K

Sep 26, 2026 - Sep 26, 2026

The Estate Office, Escrick, York YO19 6EA, UK

Inflatable 5K - York - 15K

Sep 26, 2026 - Sep 26, 2026

The Estate Office, Escrick, York YO19 6EA, UK

Inflatable 5K - York - 10K

Sep 26, 2026 - Sep 26, 2026

The Estate Office, Escrick, York YO19 6EA, UK

Ipswich Half Marathon 2026

Sep 27, 2026 - Sep 27, 2026

NCP Ipswich Portman Road, IP1 2BP

Swindon Half Marathon

Sep 27, 2026 - Sep 27, 2026

Coate Water Main Car Park, 28 The Birches, Marlborough Rd, Swindon SN3 1PT, UK