DEBRA is the national charity and patient support group for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

DEBRA UK exists to provide care and support to improve the quality of life for people living with EB, and to fund pioneering research to find effective treatments and, ultimately cure(s) for EB.

Our vision is for a world where no one suffers with EB, and we will not stop until this vision becomes a reality.