Goldenhar Support Group

Goldenhar UK is a UK-based charity that supports individuals and families affected by Goldenhar Syndrome, also known as craniofacial microsomia or hemifacial microsomia. The chairty provides emotional support, trusted advice, community connections, awareness campaigns, and educational resources for people living with facial differences and related conditions. 

It also works to improve understanding among healthcare professionals, schools, and the wider public when advocating for better recognition, inclusion, and access to specialist care across the UK.

Founded in 2003, the organisation operates nationwide as a voluntary support group for adults, children, families, and carers affected by Goldenhar Syndrome and related conditions.

Its activities include peer support, online communities, fundraising events, signposting to medical resources, and promoting research into the causes, treatment and management of the condition.