The Mikaere Foundation needs your support more than ever. One in three children born with NKH (Nonketotic Hyperglycinemia) won’t see their first birthday. This year might be the only year they have with their families. NKH is a rare and terminal metabolic disorder, limiting the lives of children who live with it.

By fundraising, you’ll help fund:

• Groundbreaking research into effective treatment and gene therapy therapy for Nonketotic Hyperglycinemia (NKH) – drastically changing the outcome for children born with NKH.
• Support services for children and families living with NKH. With NKH comes seizures, dystonia, pain and developmental delay.
• Outreach to newly diagnosed families, so they have support in their corner, right when they need it.
• Getting NKH specific information to families, nurses, therapists, carers and doctors.

But we can only do it with your help.

Your gift will help transform the life of children with NKH. It will have a lasting impact on the lives of children with NKH and their families, drastically improving their quality of life.

The ask:
Registration fee: £20
Minimum sponsorship: £200 (excluding gift aid)