SUDEP Action is the only UK charity focused on stopping preventable epilepsy-related deaths. We have the only epilepsy bereavement service freely available to anyone suddenly bereaved by epilepsy (including by SUDEP, Sudden Unexpected Death in Epilepsy) – offering telephone support, counselling, expert help through inquests & investigations, and involvement in research through our Epilepsy Deaths Register. With 3-decades experience in supporting the bereaved and fighting to stop deaths – we know the importance of working together to help others.

By representing the voices of those who have died and who are bereaved, we aim to learn from deaths, and use research, policy and campaigns to raise awareness & take action that helps save lives. Our supporters and volunteers are our heart – helping us raise awareness, funds & sharing their powerful personal experiences to drive our work forward.