Foundation for Prader Willi Research UK (FPWR UK)

Eliminating the Challenges of Prader-Willi Syndrome (PWS) through the advancement of research and therapeutic development.


FPWR UK (Foundation for Prader-Willi Research UK) is a UK-based charity established in 2010, focused on funding research into Prader-Willi Syndrome (PWS). PWS is a rare genetic syndrome caused by missing information on chromosome 15, leading to symptoms such as insatiable hunger, behavioral issues, orthopedic concerns, and learning disabilities. In addition to funding research, FPWR UK is dedicated to raising awareness of PWS and collaborating with authorities and pharmaceutical companies to bring effective treatments to individuals with PWS. The charity relies on fundraisers and generous donations to support innovative research initiatives aimed at improving the quality of life for those affected by PWS and their families.

 

Upcoming Events

What's coming up in the run for charity events calendar? It's never too late to join one of these great events.

Inflatable 5K - Bakewell - 5K

Sep 12, 2026 - Sep 12, 2026

Bakewell DE45 1AH, UK

Inflatable 5K - York - 5K

Sep 26, 2026 - Sep 26, 2026

The Estate Office, Escrick, York YO19 6EA, UK

Inflatable 5K - Cheltenham - 5K

Oct 10, 2026 - Oct 10, 2026

Evesham Rd, Cheltenham GL50 4SH, UK

Inflatable 5K - Norwich - 5k

Oct 17, 2026 - Oct 17, 2026

Royal Norfolk Showground, Dereham Rd, Costessey, Norwich NR5 0TT, UK