Dravet Syndrome UK

Hope for families with life-limiting epilepsy


Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research. We have three aims:

- To support families affected by Dravet Syndrome emotionally, practically and financially.
- To raise awareness and understanding of Dravet Syndrome among medical professionals
- To fund medical research to increase understanding of Dravet Syndrome, improve its management, work towards better outcomes and to hopefully one day find a cure

Upcoming Events

What's coming up in the run for charity events calendar? It's never too late to join one of these great events.

Inflatable 5K - Bournemouth - 15K

Aug 1, 2026 - Aug 1, 2026

the littledown centre, Chaseside, Bournemouth BH7 7DX, UK

Inflatable 5K - Bournemouth - 10K

Aug 1, 2026 - Aug 1, 2026

the littledown centre, Chaseside, Bournemouth BH7 7DX, UK

Inflatable 5K - Bournemouth - 5K

Aug 1, 2026 - Aug 1, 2026

the littledown centre, Chaseside, Bournemouth BH7 7DX, UK

Inflatable 5K - Bournemouth - 2.5K

Aug 1, 2026 - Aug 1, 2026

the littledown centre, Chaseside, Bournemouth BH7 7DX, UK

Inflatable 5K - Exeter - 2.5K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Inflatable 5K - Exeter - 15K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Inflatable 5K - Exeter - 10K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Inflatable 5K - Exeter - 5K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Inflatable 5K - Newcastle - 15K

Aug 22, 2026 - Aug 22, 2026

High Gosforth Park, Newcastle upon Tyne NE3 5HP, UK