Dravet Syndrome UK

Hope for families with life-limiting epilepsy


Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research. We have three aims:

- To support families affected by Dravet Syndrome emotionally, practically and financially.
- To raise awareness and understanding of Dravet Syndrome among medical professionals
- To fund medical research to increase understanding of Dravet Syndrome, improve its management, work towards better outcomes and to hopefully one day find a cure

Upcoming Events

What's coming up in the run for charity events calendar? It's never too late to join one of these great events.

Registration Closed

Inflatable 5K - Leeds - 2.5K

Jun 20, 2026 - Jun 20, 2026

Leeds, UK

Registration Closed

Inflatable 5K - Leeds - 5K

Jun 20, 2026 - Jun 20, 2026

Leeds, UK

Registration Closed

Inflatable 5K - Leeds - 10K

Jun 20, 2026 - Jun 20, 2026

Leeds, UK

Registration Closed

Inflatable 5K - Leeds - 15K

Jun 20, 2026 - Jun 20, 2026

Leeds, UK

Inflatable 5K - Cardiff - 2.5K

Jun 27, 2026 - Jun 27, 2026

149 King George V Dr E, Cardiff CF14 4EN, UK

Inflatable 5K - Cardiff - 5K

Jun 27, 2026 - Jun 27, 2026

149 King George V Dr E, Cardiff CF14 4EN, UK

Inflatable 5K - Cardiff - 15K

Jun 27, 2026 - Jun 27, 2026

149 King George V Dr E, Cardiff CF14 4EN, UK

Inflatable 5K - Cardiff - 10K

Jun 27, 2026 - Jun 27, 2026

149 King George V Dr E, Cardiff CF14 4EN, UK

Inflatable 5K - Southampton - 15K

Jul 11, 2026 - Jul 11, 2026

University of Southampton Sports Ground, Wide Ln, Eastleigh SO50 5PE, UK