Williams Syndrome Foundation
Supporting families living with Williams Syndrome
Williams Syndrome is a rare, randomly occurring genetic condition affecting around 1 in 18,000 people in the UK. It can cause a wide range of challenges, including heart conditions, physical and mental health difficulties, learning disabilities, and sensory, behavioural, social and processing differences.
The Williams Syndrome Foundation is the only charity in the UK that supports individuals affected by Williams Syndrome and their families. We provide vital support through funding research, creating resources for parents, carers, healthcare and educational professionals, organising regional family events, and offering respite breaks.
We help families stay connected and supported through online support groups, regional events, magazines, social media and our National Family Convention held roughly every three years.
As a charity that relies almost entirely on donations and voluntary fundraising, every contribution makes a real difference.
With your support, we can continue helping families across the UK navigate the challenges of Williams Syndrome, making sure no one faces it alone.
To find out more, please visit www.williams-syndrome.org.uk
How Your Support Helps
We do not receive any government funding. Over 80% of our income is raised by our members, their family, friends and workplaces.
£20 pays for a new member pack.
£50 pays for a family to join one of our WSF Christmas Parties, held across the UK.
£300 pays for an eduaction assessment, informing school support.
£700 pays for a family to attend our weekend family convention in Butlin's (held every 3-5yrs).
£1000 pays for a teenager with WS (supported by a parent) to attend a 4day activity break with their peers.
£1400 pays for an adult to have a week long supported activity holiday (and for their family to have a week's respite break).
Event Name 
Event Date 
Event Distances 
Event Registration Closed Featured Events
Check out these featured events from this charity
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The Brighton Marathon
Registration Price:£105.60
Fundraising Amount:£400.00
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Wizz Air Milano Marathon
Registration Price:£108.00
Fundraising Amount:£400.00
All Events
What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.
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Nottingham Running Festival 5K - November
Registration Price:£35.00
Fundraising Amount:Raise as much as you can.
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Nottingham Running Festival 10K - November
Registration Price:£35.00
Fundraising Amount:Raise as much as you can.
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Nottingham Running Festival Half Marathon - November
Registration Price:£40.00
Fundraising Amount:Raise as much as you can.
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Nottingham Running Festival Junior Race - November
Registration Price:£15.00
Fundraising Amount:Raise as much as you can.
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MoRun Edinburgh 5K
Registration Price:£34.00
Fundraising Amount:Raise as much as you can.
Regents Park - Nov
Registration Price:£32.00 - £35.00
Fundraising Amount:Raise as much as you can.
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MoRun Edinburgh 10K
Registration Price:£34.00
Fundraising Amount:Raise as much as you can.
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MoRun Edinburgh Half Marathon
Registration Price:£39.00
Fundraising Amount:Raise as much as you can.
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MoRun Edinburgh Kids Race
Registration Price:£19.00
Fundraising Amount:Raise as much as you can.
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Sussex Downs Hiking Trail - 21KM
Registration Price:£47.00
Fundraising Amount:Raise as much as you can.
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Sussex Downs Hiking Trail - 16KM
Registration Price:£42.00
Fundraising Amount:Raise as much as you can.
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Sussex Downs Hiking Trail - 11KM
Registration Price:£42.00
Fundraising Amount:Raise as much as you can.