The Sandcastle Trust


The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, providing a toolbox of services that support emotional wellbeing and resilience.


How Your Support Helps

There are approximately 6,000 rare genetic conditions. Each affects less than 0.1% of the population, but together they are one of the greatest causes of disability and early death affecting 3 million in the UK (source: National Human Genome Research Institute).

The complex challenges associated with rare genetic conditions create deep-rooted inequalities that can profoundly impact the emotional well-being of every member of the family.

The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, offering services that support emotional wellbeing and resilience, reducing the risk of poor mental health.


All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

RideFest - Bristol

Jul 17, 2026 - Jul 17, 2026

Bristol, UK

Registration Price:£355
Fundraising Amount:Raise as much as you can.

160ft Bungee - Bristol - 15 Aug

Aug 15, 2026 - Aug 15, 2026

The Grove Harbourside Bristol BS1 4RB

Registration Price:£85
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Exeter - 2.5K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Registration Price:£31
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Exeter - 5K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Registration Price:£37
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Exeter - 10K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Registration Price:£47
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Exeter - 15K

Aug 15, 2026 - Aug 15, 2026

Westpoint Arena, Clyst St Mary, Exeter. EX5 1DJ

Registration Price:£57
Fundraising Amount:Raise as much as you can.

Tough Mudder - South West 15K - Saturday

Aug 15, 2026 - Aug 15, 2026

South Gloucestershire, Badminton GL9 1DD, UK

Registration Price:£105
Fundraising Amount:Raise as much as you can.

Tough Mudder - South West 5K - Saturday

Aug 15, 2026 - Aug 15, 2026

South Gloucestershire, Badminton GL9 1DD, UK

Registration Price:£105
Fundraising Amount:Raise as much as you can.

160ft Bungee - Bristol - 16 Aug

Aug 16, 2026 - Aug 16, 2026

The Grove Harbourside Bristol BS1 4RB

Registration Price:£85
Fundraising Amount:Raise as much as you can.

Tough Mudder - London South 15K - Saturday

Sep 19, 2026 - Sep 19, 2026

Holmbush Estate, Crawley Rd, Faygate, Horsham RH12 4SE, UK

Registration Price:£105
Fundraising Amount:Raise as much as you can.

Tough Mudder - London South 5K - Saturday

Sep 19, 2026 - Sep 19, 2026

Holmbush Estate, Crawley Rd, Faygate, Horsham RH12 4SE, UK

Registration Price:£105
Fundraising Amount:Raise as much as you can.

Run Cheltenham Half Marathon

Sep 20, 2026 - Sep 20, 2026

Cheltenham, UK

Registration Price:£60
Fundraising Amount:Raise as much as you can.