The Sandcastle Trust


The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, providing a toolbox of services that support emotional wellbeing and resilience.


How Your Support Helps

There are approximately 6,000 rare genetic conditions. Each affects less than 0.1% of the population, but together they are one of the greatest causes of disability and early death affecting 3 million in the UK (source: National Human Genome Research Institute).

The complex challenges associated with rare genetic conditions create deep-rooted inequalities that can profoundly impact the emotional well-being of every member of the family.

The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, offering services that support emotional wellbeing and resilience, reducing the risk of poor mental health.


All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

Nuclear Races - Fallout 6k

Nov 7, 2026 - Nov 7, 2026

Nuclear Races, Kelvedon Hatch, Ongar Road, Brentwood, Essex CM15 0LA

Registration Price:£73
Fundraising Amount:Raise as much as you can.

Nuclear Races - Fallout 12k

Nov 7, 2026 - Nov 7, 2026

Nuclear Races, Kelvedon Hatch, Ongar Road, Brentwood, Essex CM15 0LA

Registration Price:£85
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Guildford - 2.5K

May 8, 2027 - May 8, 2027

Nightingale Rd, Guildford GU1 1ER, UK

Registration Price:£31
Fundraising Amount:Raise as much as you can.