The Sandcastle Trust


The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, providing a toolbox of services that support emotional wellbeing and resilience.


How Your Support Helps

There are approximately 6,000 rare genetic conditions. Each affects less than 0.1% of the population, but together they are one of the greatest causes of disability and early death affecting 3 million in the UK (source: National Human Genome Research Institute).

The complex challenges associated with rare genetic conditions create deep-rooted inequalities that can profoundly impact the emotional well-being of every member of the family.

The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, offering services that support emotional wellbeing and resilience, reducing the risk of poor mental health.


All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

Brecon Beacons Trails - 51KM

Aug 8, 2026 - Aug 8, 2026

Talybont-on-Usk, Brecon LD3, UK

Registration Price:£95
Fundraising Amount:Raise as much as you can.

Brecon Beacons Trails - 24KM

Aug 8, 2026 - Aug 8, 2026

Talybont-on-Usk, Brecon LD3, UK

Registration Price:£55
Fundraising Amount:Raise as much as you can.

Southampton Running Festival 5K - August

Aug 16, 2026 - Aug 16, 2026

The Avenue, Southampton SO15 7NN, UK

Registration Price:£28
Fundraising Amount:Raise as much as you can.

Frome Running Festival - 5k

Aug 16, 2026 - Aug 16, 2026

Frome BA11, UK

Registration Price:£32
Fundraising Amount:Raise as much as you can.

Frome Running Festival - 10k

Aug 16, 2026 - Aug 16, 2026

Frome BA11, UK

Registration Price:£36
Fundraising Amount:Raise as much as you can.

Southampton Running Festival 10K - August

Aug 16, 2026 - Aug 16, 2026

The Avenue, Southampton SO15 7NN, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.

Southampton Running Festival Half Marathon - August

Aug 16, 2026 - Aug 16, 2026

The Avenue, Southampton SO15 7NN, UK

Registration Price:£36
Fundraising Amount:Raise as much as you can.

Frome Running Festival - Half

Aug 16, 2026 - Aug 16, 2026

Frome BA11, UK

Registration Price:£38
Fundraising Amount:Raise as much as you can.

Southampton Running Festival Junior Race - August

Aug 16, 2026 - Aug 16, 2026

The Avenue, Southampton SO15 7NN, UK

Registration Price:£10
Fundraising Amount:Raise as much as you can.

Southampton 10k - October

Oct 4, 2026 - Oct 4, 2026

Britannia Rd, Southampton SO14 5FP, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.

Southampton Half Marathon - October

Oct 4, 2026 - Oct 4, 2026

Britannia Rd, Southampton SO14 5FP, UK

Registration Price:£36
Fundraising Amount:Raise as much as you can.

Southampton Junior Race - October

Oct 4, 2026 - Oct 4, 2026

Britannia Rd, Southampton SO14 5FP, UK

Registration Price:£10
Fundraising Amount:Raise as much as you can.