The Sandcastle Trust


The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, providing a toolbox of services that support emotional wellbeing and resilience.


How Your Support Helps

There are approximately 6,000 rare genetic conditions. Each affects less than 0.1% of the population, but together they are one of the greatest causes of disability and early death affecting 3 million in the UK (source: National Human Genome Research Institute).

The complex challenges associated with rare genetic conditions create deep-rooted inequalities that can profoundly impact the emotional well-being of every member of the family.

The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, offering services that support emotional wellbeing and resilience, reducing the risk of poor mental health.


All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

Sunderland 10K

Nov 29, 2026 - Nov 29, 2026

6a, Pier Point, Marine Walk, Roker, Sunderland SR6 0PP, UK

Registration Price:£35
Fundraising Amount:Raise as much as you can.

Newcastle Town Moor 5K - December

Dec 20, 2026 - Dec 20, 2026

Claremont St, Newcastle upon Tyne NE2, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.

Newcastle Town Moor 10K - December

Dec 20, 2026 - Dec 20, 2026

Claremont St, Newcastle upon Tyne NE2, UK

Registration Price:£32
Fundraising Amount:Raise as much as you can.

Newcastle Town Moor Half Marathon - December

Dec 20, 2026 - Dec 20, 2026

Claremont St, Newcastle upon Tyne NE2, UK

Registration Price:£34
Fundraising Amount:Raise as much as you can.

Newcastle Town Moor Junior Race - December

Dec 20, 2026 - Dec 20, 2026

Claremont St, Newcastle upon Tyne NE2, UK

Registration Price:£10
Fundraising Amount:Raise as much as you can.

Middlesbrough Half Marathon - 2027

Mar 7, 2027 - Mar 7, 2027

2 Centre Square, Middlesbrough TS1 2BF, UK

Registration Price:£42
Fundraising Amount:Raise as much as you can.

Middlesbrough Junior Race - 2027

Mar 7, 2027 - Mar 7, 2027

2 Centre Square, Middlesbrough TS1 2BF, UK

Registration Price:£10
Fundraising Amount:Raise as much as you can.