The Sandcastle Trust

There are approximately 6,000 rare genetic conditions. Each affects less than 0.1% of the population, but together they are one of the greatest causes of disability and early death affecting 3 million in the UK (source: National Human Genome Research Institute).

The complex challenges associated with rare genetic conditions create deep-rooted inequalities that can profoundly impact the emotional well-being of every member of the family.

The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, offering services that support emotional wellbeing and resilience, reducing the risk of poor mental health.