The Sandcastle Trust
The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, providing a toolbox of services that support emotional wellbeing and resilience.
How Your Support Helps
There are approximately 6,000 rare genetic conditions. Each affects less than 0.1% of the population, but together they are one of the greatest causes of disability and early death affecting 3 million in the UK (source: National Human Genome Research Institute).
The complex challenges associated with rare genetic conditions create deep-rooted inequalities that can profoundly impact the emotional well-being of every member of the family.
The Sandcastle Trust walks alongside individuals impacted by rare genetic conditions and their families, offering services that support emotional wellbeing and resilience, reducing the risk of poor mental health.
Event Name 
Event Date 
Event Distances 
Event Registration Closed All Events
What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.
Run Alton Towers 10k
Run Alton Towers Kids Race
Run Alton Towers - Spectator Pass - Saturday
Run Alton Towers 5k
Run Alton Towers Half
Run Alton Towers - Spectator Pass - Sunday
Carsington Water 10K - December
Carsington Water Half Marathon - December
Birmingham Running Festival 5K - December 2026
Birmingham Running Festival 10K - December 2026
Birmingham Running Festival Half Marathon - December 2026