We are a UK registered charity (1201650) focus on supporting families with Angelman Syndrome, funding research and providing opportunities for physical activity for the Angelman community. Angelman Syndrome (AS) is a rare neurogenetic condition affecting around 1 in 15,000 people, about 500,000 in the world. It affects the nervous system causing severe physical and learning disabilities, little or no speech and issues with movement and balance. A person with Angelman will have near normal life expectancy, but they will require support throughout their life. AS is caused by one of several different types of disruptions of a region of Chromosome 15, all involving a single gene, UBE3A.
Check out these featured events from this charity








What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.











