Dravet Syndrome UK

Hope for families with life-limiting epilepsy


Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research. We have three aims:

- To support families affected by Dravet Syndrome emotionally, practically and financially.
- To raise awareness and understanding of Dravet Syndrome among medical professionals
- To fund medical research to increase understanding of Dravet Syndrome, improve its management, work towards better outcomes and to hopefully one day find a cure


All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

Queen Elizabeth Olympic Park 5K - July

Jul 11, 2026 - Jul 11, 2026

1A Honour Lea Ave, London E20 1DY, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.

Queen Elizabeth Olympic Park 10K - July

Jul 11, 2026 - Jul 11, 2026

1A Honour Lea Ave, London E20 1DY, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.

Inflatable 5K - Southampton - 5K

Jul 11, 2026 - Jul 11, 2026

University of Southampton Sports Ground, Wide Ln, Eastleigh SO50 5PE, UK

Registration Price:£0
Fundraising Amount:£100

Run Aintree 5k - July

Jul 12, 2026 - Jul 12, 2026

Ormskirk Rd, Aintree, Liverpool L9 5AS, UK

Registration Price:£27
Fundraising Amount:Raise as much as you can.

Run Aintree 10k - July

Jul 12, 2026 - Jul 12, 2026

Ormskirk Rd, Aintree, Liverpool L9 5AS, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.

Newcastle 10k - July

Jul 12, 2026 - Jul 12, 2026

Brunton Rd, Kenton Bank Foot, Newcastle upon Tyne NE13 8AF, UK

Registration Price:£28
Fundraising Amount:Raise as much as you can.

Newcastle Half Marathon - July

Jul 12, 2026 - Jul 12, 2026

Brunton Rd, Kenton Bank Foot, Newcastle upon Tyne NE13 8AF, UK

Registration Price:£32
Fundraising Amount:Raise as much as you can.

Run Aintree Half Marathon - July

Jul 12, 2026 - Jul 12, 2026

Ormskirk Rd, Aintree, Liverpool L9 5AS, UK

Registration Price:£33
Fundraising Amount:Raise as much as you can.

Ride Reigate 100k

Jul 12, 2026 - Jul 12, 2026

Castlefield Rd, Reigate RH2 0SD, UK

Registration Price:£42
Fundraising Amount:Raise as much as you can.

Ride Reigate 50K

Jul 12, 2026 - Jul 12, 2026

Castlefield Rd, Reigate RH2 0SD, UK

Registration Price:£37
Fundraising Amount:Raise as much as you can.

Ride Reigate 25K

Jul 12, 2026 - Jul 12, 2026

Castlefield Rd, Reigate RH2 0SD, UK

Registration Price:£28
Fundraising Amount:Raise as much as you can.

Tatton Park 5k - July

Jul 18, 2026 - Jul 18, 2026

Knutsford WA16 6QN, UK

Registration Price:£28
Fundraising Amount:Raise as much as you can.