Dravet Syndrome UK

Hope for families with life-limiting epilepsy


Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research. We have three aims:

- To support families affected by Dravet Syndrome emotionally, practically and financially.
- To raise awareness and understanding of Dravet Syndrome among medical professionals
- To fund medical research to increase understanding of Dravet Syndrome, improve its management, work towards better outcomes and to hopefully one day find a cure


All Events

What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.

Registration Closed

Great North Swim - 1 Mile

Jun 12, 2026 - Jun 14, 2026

Windermere LA23, UK

Registration Price:£62
Fundraising Amount:Raise as much as you can.
Registration Closed

Great North Swim - 2 Mile

Jun 12, 2026 - Jun 14, 2026

Windermere LA23, UK

Registration Price:£74
Fundraising Amount:Raise as much as you can.
Registration Closed

Great North Swim - 5k

Jun 12, 2026 - Jun 14, 2026

Windermere LA23, UK

Registration Price:£82
Fundraising Amount:Raise as much as you can.
Registration Closed

Great North Swim - 10k

Jun 12, 2026 - Jun 14, 2026

Windermere LA23, UK

Registration Price:£116
Fundraising Amount:Raise as much as you can.
Registration Closed

Tatton Park 5k - June

Jun 13, 2026 - Jun 13, 2026

Knutsford WA16 6QN, UK

Registration Price:£28
Fundraising Amount:Raise as much as you can.
Registration Closed

Tatton Park 10k - June

Jun 13, 2026 - Jun 13, 2026

Knutsford WA16 6QN, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.
Registration Closed

160ft Bungee - Bristol - 13 June

Jun 13, 2026 - Jun 13, 2026

The Grove Harbourside Bristol BS1 4RB

Registration Price:£85
Fundraising Amount:Raise as much as you can.
Registration Closed

Great North Swim - 1/2 Mile

Jun 13, 2026 - Jun 14, 2026

Windermere LA23, UK

Registration Price:£57
Fundraising Amount:Raise as much as you can.
Registration Closed

Staffordshire Endurance Festival - 10k 2026

Jun 14, 2026 - Jun 14, 2026

Pool Ln, Walsall WS8 7NL, UK

Registration Price:£28
Fundraising Amount:Raise as much as you can.
Registration Closed

Royal Windsor - 10k Run

Jun 14, 2026 - Jun 14, 2026

Windsor SL4 3HY, UK

Registration Price:£40
Fundraising Amount:Raise as much as you can.
Registration Closed

Leeds 10K

Jun 14, 2026 - Jun 14, 2026

Clothworkers' Building South, Woodhouse, Leeds LS2 9JT, UK

Registration Price:£34
Fundraising Amount:Raise as much as you can.
Registration Closed

Staffordshire Endurance Festival - Half Marathon 2026

Jun 14, 2026 - Jun 14, 2026

Pool Ln, Walsall WS8 7NL, UK

Registration Price:£30
Fundraising Amount:Raise as much as you can.