CJD Support Network
Helping ensure practical and emotional support is available for anyone affected by CJD or prion disease
The CJD Support Network was set up in 1995 by relatives of people who have died with CJD, and is the only UK charity dedicated to the disease. Our mission is to help ensure that appropriate practical and emotional support is available for all strains of CJD in the UK, and those at increased risk of CJD. Our strategies for fulfilling our mission include; providing practical and emotional support via our national helpline and support email service, supporting those in financial need through care grants, linking those with similar experiences via our online community and in person support meetings, providing information to professionals. Our community is made up primarily of individuals and families whose lives have been touched by CJD. Our management committee includes individuals whose families have been affected by various forms of the disease, as well as medical and care experts.
How Your Support Helps
We receive no government funding at all, so we are grateful to all who fundraise for the charity. Your efforts will help provide online support groups, a telephone helpline, research grants, care grants, the poduction of high quality information, our yearly in person community meeting, and more.
If you take on an event for us, we are pleased to offer:
- a contribution to registration cost, with a suggested fundraising minimum
- a CJD Network t shirt or running shirt
- to share your story on our social media, website and newsletter
- a fundraising pack, personalised for you, including information on CJD, social media posts and more;
- to set up a JustGiving page for you if you would like us to
- to provide your supporters with CJD Support Network t shirts for a donation of £10 a shirt
- to work on any individual support that might suit you.
Event Name 
Event Date 
Event Distances 
Event Registration Closed Featured Events
Check out these featured events from this charity
Santa in the City London - (Tuesday)
Santa in the City London - (Wednesday)
Santa in the City London - (Thursday)
Middlesbrough Half Marathon - 2027
Run South London
GetPRO Bath Half
Barcelona Marathon 2027
The Brighton Marathon
Wizz Air Milano Marathon
Shakespeare Marathon
Essar Chester Half Marathon
Edinburgh Marathon - Edinburgh Marathon Festival
All Events
What's coming up in the run for charity events calendar? It’s never too late to join one of these great events.
Victoria Park 5K - November
Tatton Park 5k - November
MoRun Nottingham 5K
MoRun Whitstable & Herne Bay 5K
MoRun Whitstable & Herne Bay 10K
MoRun Nottingham 10K
Tatton Park 10k - November
Victoria Park 10K - November
MoRun Whitstable & Herne Bay Half Marathon
MoRun Nottingham Half Marathon
Victoria Park Half Marathon - November