SUDEP Action
The only UK charity specialised in supporting & involving people bereaved by epilepsy, dedicated to raising awareness of epilepsy risks & tackling all epilepsy deaths.
SUDEP Action is the only UK charity focused on stopping preventable epilepsy-related deaths. We have the only epilepsy bereavement service freely available to anyone suddenly bereaved by epilepsy (including by SUDEP, Sudden Unexpected Death in Epilepsy) – offering telephone support, counselling, expert help through inquests & investigations, and involvement in research through our Epilepsy Deaths Register. With 3-decades experience in supporting the bereaved and fighting to stop deaths – we know the importance of working together to help others.
By representing the voices of those who have died and who are bereaved, we aim to learn from deaths, and use research, policy and campaigns to raise awareness & take action that helps save lives. Our supporters and volunteers are our heart – helping us raise awareness, funds & sharing their powerful personal experiences to drive our work forward.
Ready to take on your My Way to 5K challenge?
Join a popular organised 5K or 10K run nea you and turn your miles into meaningful action for SUDEP Action. Whether you’re taking your first steps into running, building on your training or looking for a new challenge, these events are a great way to get moving, meet fellow supporters and raise vital awareness and funds. Together, every step can help us work towards a future where no family has to face the devastating impact of SUDEP.
How Your Support Helps
Supporting SUDEP Action means standing with families at their darkest moment and helping to prevent other lives being lost too soon. Every week in the UK, people die because of epilepsy — many of them unexpectedly, and many in ways that could have been prevented. Behind every death is a devastated family searching for answers.
Your support helps ensure no one must face that pain alone. SUDEP Action provides the UK’s only free, specialist epilepsy bereavement service, offering understanding, compassion and expert support after a sudden epilepsy death. For many families, this lifeline is the first place they feel truly heard and supported.
Together, we can reduce preventable deaths and create a future where fewer families must experience this heartbreak.
Thank you for helping SUDEP Action make a difference.
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What's coming up in the run for charity events calendar? It's never too late to join one of these great events.
Victoria Park Half 5k - October
Chase the Moon Battersea 5K - October 2026
Tatton Park 5k - October
Goodwood Motor Circuit 5k - October
Run Heaton Park 5k - October
Cannock Chase Running Festival 5K - October
Newcastle Town Moor 5k - October
Hampton Court Palace 10k - October